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So we started a day with a call from Dr. Wright, she called to let us know that Nicholas' CSF (Cranial Spinal Fluid) was clear and had no cancer cells in it. They did the lumbar puncture yesterday during the MRI. We did a barium swallow test today. They placed Nicholas in front of an x-ray camera and we gave him food and different forms of liquid that has a contrast to show if it goes into the lungs or if it goes to the stomach. He was a hand full and it was a struggle. but we got the test completed. He swallowed perfectly! After 4 months to the day, our boy is now able to swallow! This is such a blessing! There are some children that never get their swallow back or sometimes it takes over a year to return. Our only problem is that now that he hasn't ate for 4 months - he doesn't want to now. We know it will be a gradual thing and it wasn't going to be an over night transition. The one thing we sure have learned is patience. Everything about this process just takes time. Baby Nicholas is gaining strength daily and his ANC was 4,900 yesterday. He's playing and acting like an 1 year old and sporting that new bottom left tooth too!
Attached is a photo of a gift that Christy and Todd Bailey (Ryken's family) gave to baby Nicholas for his 1st Birthday. THANK YOU! A cute warm shirt, a hat and some socks! That hat in the photo on September 22nd post is that hat - too cute!
Dear Lord,
What more can we say but thank you with our hearts are filled with so much JOY over the last 2 days. We have no clue what our future holds but we are so very grateful for the moments you give us. Those moments are what makes life's struggles worth it all. With gratitude in our hearts - we praise you God.