It was a stressful night and we barely slept, Baby Nicholas can not sit up and can not really move - so either Nick and I are holding him or he is in his stroller and I am walking for hours to keep him calm. This paw sign is on our way to Jude and back from Grizzle House.

He has an MRI today - repeat to confirm that Dr. Gilmer did achieve a gross total resection. Their technology is so much more advance here - it's a bit scary ..... nonetheless, Dr. Wright came out and sat with us and told us it was clean and that their is no tumor. She said the LP came back fine and that tomorrow they will place his line, double lumen Hickman line. They will also place a g-tube and remove his NG tube from his face so that he can move his arms.

I am relieved with this happening tomorrow so that he can be mobile without a cord coming out of his face. We met a family here, there son is Seth B. on our friends we follow. They explained to us that most families call this week - hell week. Because you are so overwhelmed and terrified it's literally hell. I can related, this is totally terrify and I walk around this campus just in prayer for hours.