Day 12 of Proton complete - his neck is starting to get a little red from it. Today we have a speech therapy appointment to just get more techniques to get him to "want" to drink. We already know he can drink - he just doesn't do it in large volumes so we are still stuck bolus feeding him for fluid intake only.

The therapist had him drinking off spoons, cups and straws in small amounts - it's just going to be a lot of effort to get him to "want" to drink a lot. It was helpful to go and I have new ways of trying to get him to drink now even though I have been trying so many different things....

Jen, Ryan and Robbie came by tonight and hung out until 11pm, so maybe Nicholas will sleep a little better tonight.

Dear Lord,

Please help give me the tools and techniques to get Baby Nicholas to want to drink so that we can be completely done with mickey button / g-tube feeds. It will be such a huge relief to be done with this! Thank you for all the progress you have allowed our precious boy to make ....