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David P. I met Ginny David's Momma through ependyparents. David was diagnosed at 7 1/2 months old with ependymoma grade 2. Our children's Birthdays are 3 days apart. When I read her story it was like I had written it. She and I reached out to each other immediately - the similarities were overwhelming. We not only share a story but a friendship as well.
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Lily P. Lily was diagnosed at roughly age 5 with Ependymoma grade 2, her grandmother Jeanie is the reason we found Lily.
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Jaryn M. At 2 1/2 years old Jaryn had an Anaplastic Ependymoma tumor near his Cerebellum and brain stem. Four hours of Surgery resulted in a total gross resection and he finished Radiation 08/2009
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Aaron B. Aaron was diagnosed at age 11 I believe with Anaplastic Ependymoma Grade 3, we met here at St Jude this summer while he is being treated for a relapse - please pray for him!
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Ryan J. At 3 years old in August 2009, Ryan J. was diagnosed with a massive 4 inch, grade 3, Anaplastic Ependymoma tumor in the posterior fossa of his brain. He underwent 9 hours of surgery the next day. He then had 6 weeks of proton beam radiation in Boston.
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Aaron G. Aaron is 4 years old. He was diagnosed with a brain tumor called ependymoma 2 weeks after his first birthday. He recurred in November 2008. He is currently in treatment.
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Charlie B. Charley was diagnosed in July 2008 at 11 months of age with Grade 3 Supratentorial Anaplastic Ependymoma. We have been following Charlie since our stay in the PICU.
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Maeve Maeve was diagnosed with a brain tumor Ependymoma grade 2 in August 2008 when she was 18 months old. Following a GTR, Maeve underwent the Head Start III chemotherapy protocol.
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Peyton H. Peyton was diagnosed with a Brain Tumor on Tuesday, August 2, 2005. She had surgery the very same day. The tumor was an Anaplastic Ependymoma. She remains stable today.
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John J. We have never met John J. - we only know his Momma through ependyparents group. He was Diagnosed last year at 2 1/2 years old with a brain tumor called Anaplastic Ependymoma and was treated at MD Anderson.
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Coop H. Coop H. was diagnosed with a low grade brain tumor called Ependymoma, though low grade at the initial diagnoses, he has had 3 resections, Proton RT and then Cranial
Spinal RT and is currently on chemo. Say a prayer for him!
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Matilda C. Matilda C. was 15 months old when she was diagnosed with a brain tumor called Infratentor Anaplastic Ependymoma. She did 5 round of high dose chemo at Children's National Medical Center followed by Proton Radiation in Boston.
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Ivee F. On December 18, 2006 Ivee Foley was 7 months old when she was diagnosed with Anaplastic Ependymoma. She had 6 months of chemo and then 33 treatments of radiation at St. Jude. She finished treatments in August 2007. She has now relapsed as of Jan 24, 2011. Please pray for her and her family!
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Nicholos W. Nicholos W. was 5 years old when diagnosed with Anaplastic Ependymoma July 2003. He is a miracle case because his cancer has not come back. He is a 6 YEAR SURVIVOR. He is 12 years old now and in the 6th grade. He was treated at Blair Batson Children Hospital.
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Olivia S. One week before her 1st birthday March 27, 2007, Olivia S. was diagnosed with a brain tumor called Anaplastic grade II Ependymoma.
She is currently 4 years out with clean scans.
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Caelin T. Caelin T. was diagnosed Dec 2010 at 14 months old with Anaplastic Ependymoma. She had a GTR and is currently in Boston for Proton Radiation.
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Alexander M. Alexander M. at age 2 he diagnosed with a grade III Ependymoma brain tumor, 11/15/08. He fought it until 7/22/09.
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Euji P. Euji P. in May 2007 was diagnosed with Grade II Ependymoma in Posterior Fossa at 18 months old. Oct 2008 - Recurred with Grade III Ependymona in the same location. Nov 2008 - 33 rounds of Conformal Radiation Therapy and Dec 2009 - Recurred with Grade III Ependymoma in the same location. He lost his battle July 27,2011.
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Landon H. Landon H. at 10 months old was diagnosed on January 26, 2011 with a brain tumor called Anaplastic Ependymoma. GTR and now in the process of Proton radiation.
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Anderson B. Anderson B. at 7 months old, he was diagnosed with a brain tumor called Anaplastic Ependymoma. He did 33 conformal radiation treatments.He has faced multiple relapses and He lost his battle earning his wings on July 31, 2011.
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