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Day 20 of Proton...complete!My boy has been such a trooper --- so many Mom's say that their cancer child is their hero, but I was reminded by Nicole that read me a piece another Mom posted and I wanted to share it with you all below. Labs are in - his ANC is 908 that's the lowest yet. His platelets seem to be dropping weekly since we started radiation they are at 145. We had Jen, Tim, Ryan and Robbie over tonight - they brought carry-out and I can't believe they are leaving here in 2 days. At least we will see each other at St. Jude in 2 weeks for all our testing so we will be on the same schedule for chemo and MRIs for a while, which is nice to be able to see faces we know from this journey when we go back.
Our night ended a little early because Nicholas got sick, I was a little late in giving his Zofran to him and he clearly needs it scheduled still. We are down to single digit days left of treatment .... I am looking forward to packing up soon!
THIS WAS WRITTEN BY JULIANS MOM :::
These children are being called heroes by many. It makes me cringe a little. A hero usually has a choice in his actions. They choose to do the right thing to save a life, they choose to go to war, be firemen or soldiers.
Our babies were thrown in this war against their and our will. To me they are victims, not heroes. Most time they handle this crap with grace. They smile a lot , survive the bumps in the road , they seem brave doing it. Maybe true for some of the older kids, but the little ones??? They don't know any better. They are resilient because that's just how kids are. They don't think about tomorrow or the next admit until they are older. THEY ARE KIDS and they got cancer. It is unfair, unhuman and so so wrong.
Julian isn't a hero , he is a victim . His story has helped a lot of people , and might still help more. At least that's one good thing that came out of this horror we live.
Again these are MY words. I don't hold back on the way I feel.