Day 6 of Proton - complete! Well Annie is here today and she came and sat with me and I told her what happened last week. She immediately agreed and switched my doctor for me. I left feeling relieved like a bad weight was lifted off me. Then 2 hours later she called me to tell me that our time switched and when I asked why she said that they were waiting for new equipment because his radiation plan had changed. I was in shock, why I was not told is scary and this is just unacceptable that this was in the process without any notification. How did this happen? I called St. Jude Dr. Merchant said he was aware but to what degree? How is there changes on a radiation plan and I am the last to know - this is my son's life? I am miserable and confused. Why did they allow him to be treated for the last 6 treatments without telling me they were changing this? When I asked I was told that Dr. Marcus admits that he screwed up. I just don't understand how that's acceptable!

PS He's got eyelashes finally ....