Day 2 of Proton .... today started out bad because Wednesday's they start an hour later and they were also having problems with the X-ray machine, so lining up the kiddos is taking longer than it should. Its tough because they fast for 6 hours before every appointment and we got there at 9:20am for a 9:45am appointment and did not go back until 11:30am. Then once back, they once again had X-ray machine issues that kept him sedated for 2 hours, typically it's 30 minutes. He woke up again HORRIBLY because it wasn't the same anesthesiologist and he didn't know he woke up so quickly. They now know that he needs a little more before they move him. However he was a mess afterwards.

Then the staff told me I needed to wait because Dr. Marcus needed to see me. My day went from bad to TERRIBLE. Dr. Marcus walked in and said, I need to apologize to you I did not see your son's scans before we met last. I guess you could say I was in shock, upset, confused etc. How in the world does a Doctor look you in the eyes and consult with you about your child's life and then say, I did not look at his records? He then said his left cochlear (left ear ) would have significant hearing loss. I then asked again about his hormones and he said they should be fine. I couldn't think straight to ask any other questions, I was simply caught off guard with this news. He told me we can get creative with how the radiation is delivered to spare his left ear .... I thought to myself did he honestly use the word creative just now ... this is my son's life here.

I left upset, I feel lied to and I feel like I can not trust this man as my son's doctor.

On top of that, I came home and Nicholas threw up and then passed out. It was too much for him to be sedated for so long and then eat. What a day .....