Our sweet boy is in heaven on March 9, 2014 .....please pray for us as a family as we will forever mourn his sweet face.Thank you for following my baby and loving him enough to keep our family in your hearts .....forever heartbroken - Nickybears Momma
Ok quick update - as you know Nickys had a cold last week. We didn't know if we should go because they won't sedate him if he's congested etc. So we went to his pediatrics this morning and she gave us the green light and also caught that he has an ear infection in his right ear. So pray for HEALING ... Pray for a safe trip to Memphis we leave at 1pm to head to the airport. We didn't pack - so we are rushing now. Pray for a smooth day tomorrow and a clear / clean MRI. Thank you LORD for letting him heal over night so that we don't have to reschedule!!! Thank you for your prayers ... see - they do work!
GOD BLESS YOU ALL .... I will update as soon as I can .... late tomorrow.
This is one of the first times I sat in front of a computer key board and just starred .... All day trying to compose myself, to look uneffected.... I was shocked at the responses from people I love .... the first one I will never forget .... it was such a selfish comment. I won't name names .... they know who they are, the first was a call that caught me off guard while I was visibly in complete shock after reading post from Anna Rose's Daddy that she earned her wings early Sunday, 2/19/2012. I knew it was happening, but even when I know the pain is no less. Did I pray differently because I knew it wasn't good - "NO!!!!" I wouldn't want someone to pray differently for my son .... so after the call when they clearly didn't take notice to my upset voice, because they were too about themselves to notice I was upset.... I text them and said, sorry you caught me off guard ... Anna Rose earned her wings this morning. Their response ::: "Yup I'm sure lots of people earned their wings today ( smiliey face) and it happens every day. People we don't even know die for our freedom! God Bless them all. Love have a Blessed Day.
I honestly couldn't believe what I just read .... this is someone that is close in my personal camp, someone that was not there when I needed them most - but told me they regreted it. My response ::: People that die for our freedom had a choice to be HEROS - these babies have no choice :(
I am grateful for my armed forces, for fire fighters, cops and the people that choose to get on the front line for us. I mean no disrespect, but to say that to me - a mother of a child who didn't enroll in a superhero voyage, I never got the choice to put my son through hell with chemo and radiation .... was just a horrible, SELFISH comment on their part, and as I keep telling that person they have no clue .... they made it clear they have no clue.
The second blow came again from someone close," there will always be a child dying ... another doing bad" .... NOT TO ME .... these children I love are personal ----- they each have a part of my heart .... I love them and I feel so sorry for the ignorance of others and pray that God allows them to learn through us still because I would never want them to endure this way of life. I am grateful for each child that the Lord has brought into my path so I ask for you to pray for Anna Roses Family and Friends that miss her and will continue to miss her all the days of their life.
Please Pray for Brees LP today to be clear of cancer cells - Pray for our Nickys cold to go away so we can get this MRI over with and with CLEAN SCANS... I wanted to Share Anna Rose with you .... this is something I will never get use to, I hope and pray you don't either .... pray for CURES ....
To the left is One of NickyBears finest Guardian Angels, Kendal Lividini ... Kendal is my husbands dear friends daughter that lost her fight to AML Luekemia Jan 7, 2011. We know that Kendal is watching over Nicky because she prayed her heart out for him, despite her own illness. Kendal, if you can see this ... we miss you and are so grateful for the love you had for a little boy in Memphis just beginning this journey. We believe you will always be watching over him.... I also placed the Orange ribbon on your photo, because this month, February is Luekemia awareness month. May God bring CURES.
I will leave you with this photo taken yesterday of Nicky ... please be mindful of the things you say to others. Be Kind to every one Always ... God Bless... and thank you for your continued support and prayers.
I planned to email out the previous update below, until I got a phone call that stopped me in my tracks. I needed to wait until the family was ready to publicly tell everyone and so the post below this one is a bit delayed in reaching you all.
Baby Evan earned his Angel wings on Saturday 1/21/12 just two days after his first birthday. I ask you all to pray for his family and friends in the coming, days, weeks and months to come. While our minds know that he is home with our Lord, our human hearts long for him to be here in his Momma's arms and to see him grow up. I ache for every family that has endured such an immesurable loss, yet in the cancer community I can't even count how many children I have witnessed earn wings far too soon.
What I have learned is that some typical quotes with childhood cancer will simply never apply. God only gives you what you can handle is a tough one to hear while a mother holds her only child for the last time in this earthly life. Don't get me wrong, my faith remains centered and it gives me the strength to keep moving, praying and doing all I can to help other families effected by these diseases. There is never the right words to comfort a grieving parent. While if you believe in God, we do truly know there is no greater healing than to be present with the Lord, fully restored. It is again the battle of the human heart and our expectations of wanting them healed in their earthly life and their earthly bodies that hurts to read on blog after blog that a child is now healed, in my mind I think yes ... they are ... but not here and I weep. I cry for the families that are left broken over this loss - the magnitude of love for a child has no boundaries, nor any limits ... our hearts long for them to live and grow up healthy and well. Here is Baby Evan's site http://www.caringbridge.org/visit/evan011911
Last night I got a panic text from a dear friend of mine Ginny, little David is the same age as Nicky and their stories are almost exactly the same. David was diagnosed a month earlier than Nicky with the same diagnoses and their treatment was almost the same and their birthdays only 2 days apart. We met in the beginning and having such similar stories, we bonded quickly. David was rushed to ER last night, after bath time he suffered a short stroke. No neurological issues, thank you Lord. I ask that you pray for him while the doctors figure out their plan of action right now. This is David to the right. I ask you all to please pray for peace for his parents while they wait for answers.
If you haven't taken the time to read the post below - I encourage you to. I updated you on all the children from my protocol.
"Cancer" - what comes flooding into your mind when you hear the word Cancer? Most of us can sadly apply this word to someone we know or love, regardless of the outcome. One word, Cancer - numbing, crippling, anxiety, fear, depair, hopeless, helpless, pain, torture, heart gripping, grief and many many more.
However it is through true Faith in the Lord those words turn into hope, determination and you learn to lean on God completely. Jessica Joy Rees a 9 year old touched the world in her 10 month battle against an inoperable brain tumor. She was the child of a pastor from Saddle Back Church in CA. She told the world "NEVER EVER GIVE UP" , she earned her angel wings on Jan 5, 2012. The letters N.E.G.U. standing for her phrase "NEVER EVER GIVE UP" has become her legacy she has left on our world. While sick, Jess created JOY JARS and filled them with treats and toys for kids fighting cancer. This past week we recieved a JOY JAR from NEGU Foundation. I couldn't help but cry when I saw this beautiful colorful kid like box arrive and saw Jessica's photo on it. Through so much sadness there is so much good that rises from people like Jessica.
This was a difficult week - I have been asking you all to pray for many children and I STILL ask you to continue to .... I have had a hard time writing a post lately, there's just too much sadness in my heart over children I have grown to love. Last week you all saw me post on facebook that Anna Rose was placed on Hospice and her health is rapidly declining. As if that alone wasn't hard enough, there is a nationwide shortage of IV morphine to keep their daughter comfortable. Each post gets harder and harder to read knowing she is suffering. There is nothing to describe the pain in my heart reading her Daddies words lately. This past Friday also Bree H. rescanned - it only brought a confimation that the cancer has returned. I can not tell you how helpless I feel when I have a parent, in this case Kris call me with a tear filled, choked up voice say, "I can't imagine living without her". There is NOTHING worse than the thought of a life without your child that has been through so much temporary torture in order for them to be cured - only to be told its back. It is unclear until Monday when they perform an LP ( lumbar puncture ) what possible options will be. I ask you to pray that her CSF ( cranial spinal fluid is cancer free ), that a safe surgery can be preformed, allowing her to still be able to beat this disease.
Now to update you on my Nickybear. He's such a precious child! He loves the snow though we have not had much that sticks. As you may already know we are due to fly in to St Jude Wednesday. February 22,2012 and he will have his port accessed and an assessment done for his MRI on the 23rd. All winter long we have stayed home to keep him safe and as timing will have it, Christian got sick about two weeks ago - then the following week Nick got sick. Nick didn't call the doctor when he should have and well ... he only got sicker. As you can probably guess even though I did all I could to keep him away from his Daddy, Nicky started up with a coup voice on Tuesday night it is now saturday and he sounds so congested coughing. So please pray this cold goes away! Not much we can do but give him benedryl to dry him up a bit but boy getting him to take any meds is close to impossible. So .... we will raise no red flags unless he's still sounding this bad by Monday afternoon. Last year, his Feb scan he was fighting a cold then too and the day before the MRI - he was fine thank God. Please pray it goes away now so we are not stressed out wondering if he can get scanned. We also ask that you pray that his scan results are cancer free.
We take a ton of naps together and I am just so grateful to cuddle with this precious boy of mine. He has finally added some new words to his vocabulary - LOL of course Elmo is the word this week, no shocker there since he loves Elmo. He's such a boy too, Cars everywhere and we repeat watching the movie Cars non-stop from his room to the living room there is a trail of Cars everywhere. This past month I decided I was done waiting at Rose Cancer Center for port flushes when I knew I was completely capable of it myself. Some of you saw the post on Facebook but this is the needle I have to place in his port in his chest to flush monthly. I promise you a cancer mom is truly an un-certified nurse. Its amazing all I have had to manage and learn over night during this journey.
He is just a joy and so interactive, he loves to play with his toys and now he imitates what the characters do from Toy Story. It's just amazing how much he has grown in the last few months. He LOVES to Dance and LOVES to slap and twirl around till he falls on his butt. I am just so blessed God gave this child to Nick and I! He loves to chase the dogs around and tease them and he loves any attention his big brother Christian will give him. I look at him in amazement when I take a look back from videos and photos of the last year and a half, he's came so far and we thank God every single day for this gift.
Dear Lord,
Please watch over Nicky this week, heal this cold so we can get to Jude safely and please Lord, let him remain cancer free. We ask that you watch over our friends that we are praying for - that you bring healing and comfort to each of these precious babies. That through you, our Father - that you will extend your arms around the families and comfort them and bring peace to all that in out of our control. Faithfully we ask for miracles because Lord, we know YOU ARE ABLE. Father bring CURES ... PLEASE ....
Oh ... lastly I forgot to mention we started speech therapy to get the ball rolling and even though its very repetitive, I have learned sitting there how to help Nicky be more vocal and it is totally catching on. When we go to the pantry now he use to shake his head - now if I grab the wrong thing he bluntly says "NO" lol ... he's becoming more vocal and saying new things all the time - what a blessing! Thats Nancy below his speech therapist!
We have had quite a crazy few months and tonight I feel my heart is so heavy I might burst. Though today marks that Nicky is 28 months old, I think its time to re-visit the kids from my journey and though this is not a typical Nickybear update - it is what I believe we all need to understand is that cancer is vicious and plays by absolutely no rules. I fall apart at the thought of having to go through this all over again, yet too many of my friends and their babies are back at St Jude.
I will start by updating you on each child that needs prayers and how to pray for them, this seems easiest.
I will start with them in the order of the video so you can see how they have grown, the ones fighting so hard AGAIN, sometimes AGAIN & AGAIN and the ones that have passed away ... and a few updates among our Angels too.
1. Ryan D. - is N.E.D. ( no evidience of disease) and in school and she always has a little bit of her "Lia's" heart.... that's what she calls me. Her next scan is Feb 22,2012 2. Ashlan B. (showed in the photo to the left) was diagnosed with astrocytoma - STILL fighting her disease and scans Feb 22, 2012 next scan we want NED. Her Momma wrote:::
When you look at Ashlan you see a beautiful, spirited angelic child...I often look and think how could cancer have ever touched something so pure. It's baffling!
I can't agree more and we are praying!!!
3. Megan P. is N.E.D. please pray for her next scan Feb 1, 2012 4. Cora M. N.E.D and her next scan is Feb 10, 2012 5. Bree H. scanned this past week ... this is the reason that I decided to update all of the kids .... This is Bree today below with her sister Zaya.
Now Bree looks amazing, but but scan said that's simply not true. I won't accept that nor should you! Bree was just a baby 12 months old with desmoplastic medulloblastoma when I met the family and heard faintly ... "Welcome to St Jude" ... I was awaiting a clinic appointment and my heart sunk. I quickly turned around and told her I was so sorry they were there... I found them later that day and thought - I am leaving for radiation soon, Christy, Ryken's Momma would be a good pair for her .. I thought a buddy support system was great ... why ??? Because I found my best friend, my closer than blood sister Nicole (Baby Wade's Momma) this way ... still today ... I love her so much and I carry Baby Wade in my heart. I thought all families should have someone to match up to during this ride.
So Wednesday night I got a private text from Bree's Momma... Thursday confirmed the phone call from Wednesday. I HATE CANCER!!!! So they were told this from their website:::http://www.caringbridge.org/visit/breehaga
New enhancement(highlighting), new small foci of restricted diffusion raises concerns for the developement of recurrent tumor and/or leptomeningeal metastatic disease.
I am numb, this word " leptomeningeal" is the most feared word for a baby under the age of 3, there is no treatment for it .... like my dear friend said ...leptomeningeal is like a doughnut ... dipped in sugar, how do you take the sugar off ??? You can't ... thats painful ... the visual of someone shaking powder over a babies brain and not being able to treat it hurts to my core.
So, pray with me these reports can and have been wrong before .... let it be so so very wrong now!
6. Nathan B. is N.E.D. and will be scanning this week Jan 24-27 pray for NED. 7.Colin T. is N.E.D. and will be scanning at the end of March pray for NED. 8.Abigail S. is N.E.D.not sure when she scans next but she did welcome a baby brother in September named Elijah Thomas! 9. Ian M. is N.E.D.will scan the first week of March pray for N.E.D. they also are welcoming another baby boy to their family in a few months.
10. Riley B. ( to the left) another reason I post tonight .... just recently diagnosed with pituitary tumor .... not sure what it is - BUT PRAY! His Momma hasn't updated the caringbridge yet.
Please just keep praying for him ... he was 9 weeks old at diagnoses for glioblastoma ... this seems like a secondary issue from treamtent and he needs us to pray!
Its hard for me to see these children as a picture of health and then a new scan indicates a completely different picture, I feel the parents caught off gaurd yet we all know its possible. I need you to read this post and pray along the way ...
11. Isiash P. is N.E.D and just finished HBOT treatment for necrosis from radiation. What that means is that the treatment was not only killing cancer but healthy brain tissue and for them to stop it, this 6 week therapy helped him greatly. This is not the case always and I am so grateful that this worked for him - Hyberbaric Oxygen Therapy.
12. Luca P. (Photo below) was diagnosed as a classic Medulloblastoma and had a second surgery to remove his cancer and then went to MD Anderson to have full cranial and spinal Proton radiation done. Words from his last scan::: http://www.carepages.com/carepages/LucaPaonessa
Thank you all for your continued support and prayers. Today we received good news. The PET scan was negative and MRI showed no new lesions and the "spot" was stable. Not sure what the "spot" is but it doesn't appear to be tumor. We are thankful beyond words. Also, spinal fluid was negative. So, no surgery for Luca and a blessed Christmas. Luca will continue on oral chemotherapy and we will scan again in 2-3 months. Sending each of you a big hug from Luca. I BELIEVE.
We are all BELIEVING right with you! He Scans Feb 1-2, 2012 at Jude Pray they hear N.E.D.
13. Tyler B. is N.E.D and scans Feb 22, 2012 pray for NED 14. Seth B. is N.E.D. and scans Feb 9, 2012 Pray for NED 15. My Nicky is N.E.D. .... and the 15th child to go to Proton in Jacksonville .... next scan Feb 23, 2012 Pray for NED 16. Yeeshai G. is N.E.D. and scans are coming up for him in Feb sometime. 17. Brody S. in the picture to your right was diagnosed with a PNET tumor, just moved back into Target House to start chemo and already completed full crainal and spinal radiation. He needs our prayers, I will take a quote from his website his Momma wrote:::
Oh and yes the MRI results! I was hoping the Doc would have seen the MRI instead of just the report, but this has not happened yet. So we discussed the report briefly with our NP. The results showed an additional “brighter” spot adjacent to a previous spot. It has not been ruled out to be a vessel. A 2nd MRI will need to rule this in or out. Another MRI will not be for 2 months! I’ve tried not to let the results weigh to heavily. It is just crucial that his cancer respond to this chemo combination. I am trying not to think of our next scan, but I must say the anxiety is looming. What a huge scan it will be. Will the chemo be working or not? Praying….
So to conclude on Brody, Pray for his parents and for Brody that this chemo is working and that with the radiation this is his cure!
18. Lain T. I believe he is N.E.D. and I am waiting for a confirmation from his daddy. 19. Christian S. is N.E.D. and he welcomed his new baby sister Katie back is August. He scans March 7 I believe. 20. Sofia C. diagnosed at 7 months old with ATRT made it trhrough chemo and Proton, she earned her wings at 9:10am on June 22,2011. Prayers for her family ... her family also welcomed a new baby girl into their worlds Bibi Dec 12, 2011 21. Aiden L. last scan in Nov was N.E.D. and is a big brother to his sister Layton Brooke 22. Angel C. is N.E.D. and has a scan in March 23.Kelly C. is N.E.D. and just turned 3 .. she should be scanning in March 24. Kylie O. (in the photo below) had tumor progression back in Nov at her scan and is now been placed on the ICE protocol of chemos for the next 6 months. Please pray the chemos work for her. Her tumor type is 1 of a kind in the world, a primary epithelial and so knowing how to treat it has been a difficult task for the doctors.
25. Peyton A. ( in the photo below) was diagnosed with Desmoplastic Medulloblastoma, his last scan revealed a tumor the size of a peanut. He is scheduled for surgery this is what his family wrote on his update:::
We knew there was a 10% chance that it could come back but we were praying he would continue to be cancer free. Peytons tumor is in the same place it was in the beginning, which is a blessing as we do not want the tumor spreading to new areas. The tumor is the size of a peanut and will be removed on Monday. The doctors are very confident that they will be able to remove all of the tumor again. We know we have the best doctors surrounding Peyton and that he is in the best care. After the surgery he will spend a little time recovering from the surgery and then will undergo radiation in Memphis.
Please pray for Peyton as he is very aware that he will be back at St Judes, the doctors and nurses that will be taking care of him, and safe travels for us all.
So I ask you again with this relapse that this treatment path and surgery are his CURE!!!
26. Sidney H. is N.E.D. and is doing well. 27. Sophia W. is N.E.D. and is doing well and just had her port removed Dec 2. 28. Rachel D. is N.E.D. and doing well ... 29. Avery C. (to the left) hit a bump in the road once again this past October and she is now on a new protocol in her treating home hospital, she just scanned there and is STABLE thank you Lord ... we want to see N.E.D. please pray this treatment continues to work for her. She will also be scanning again at Jude Jan 29 - pray for even more healing ...
30. Belle M. ( photo below) was diagnosed with Choroid Plexus Carcinoma and has been finishing up her chemo after doing full radiation. She scans in the next 2 days, please pray she is STABLE or better yet ... N.E.D.written from her website::
Belle is feeling good. We are on our way to Memphis this afternoon. Please pray for a safe, uneventful and on-time flight! Thanks for your prayers.
Miss Belle we are praying right with you ...
31. Haley H. (in photo to the right) after her relapse of Anaplastic Medulloblastoma and finishing full radiation I am happy to read this post from her Momma on Dec 13. ::::::::::
Today is a special day because we are celebrating a clean report for Haley's MRI and Spinal Tap. This means she is presently tumor-free and kicking cancer's butt! We aren't allowed to call this stage "remission" or even "cancer-free", but we can say that no tumors or cancerous cells appear to be in Haley's system at this present time. (Tom asked the doctor so that we would be "politically correct" when speaking about Haley's illness.)
Haley we are praying you have only N.E.D. scans from here on out.
32. Ehrren G. (photo below) has had a difficult road with Anaplastic Ependymoma and is once again at St jude for radiation. His momma counts down and they only have 12 treatments left!
And for all the ones we have lost, please pray for each family .... the strength to endure, know that your children are NEVER forgotten and each face is part of anyones heart that watches this video and shares it too. There were a few faces missing, John B. lost his battle with ATRT earning his wings. Lanie W. also passed away http://www.caringbridge.org/visit/laniewatkins and earned her wings and lost her fight against Medulloblastoma. There are new families I had added that were not in the video and they are all in treatment still and some have finished - so please pray for the new families too. Willa Rose F., Ronan V., are both headed to Proton and Maisie W. is scanning Feb. 1-2 she is NED and we pray it stays NED. Some don't even have websites but these are the ones that do so you can always find them on the friends we follow tab under SJYC07. We also have Hallie C. that is finishing her round 4 of chemo then a scan to follow in 3 weeks pray for NED.
In our Angels .... Baby Wade is a big Brother, to a little brother named Jackson. Baby Mason is a big brother to a sister named Nia, Ana Sofia C. is a big sister to a baby girl named Bibi and sweet Ryken is a big brother to a baby girl on the way the first week of March who will be named Griffin. We welcome all the new little ones and pray for their health always. I am certain there are many more new additions I am not aware of or might miss on this update. But this update was long over due, I showed the ones that are still fighting so you can see the faces of the babies that I am asking you to pray for.
Lastly, we lost a face many St Jude families know - Clinton Miliken we was diagnosed with Medulloblastoma right before his 5th birthday .... He earned his wings on Jan 19,2012. This is him below .... PLEASE PRAY ... I know you can't remember each child ... but pick one or two and really pray for them .... these are the faces I need you all to remember right now.His Momma wrote this on facebook:
Posted from Kim Mabry Milliken: Today at 2:46 while cuddled in my arms, my sweet Clinton Milliken left this earth and let his heart fly away to heaven.
As my friend Red said, " I hope gods ready when he brings that angel home cause he doesn't play the harp he bangs the drums and wears fireman rain boots while he does it."
I honestly couldn't believe what I just read .... this is someone that is close in my personal camp, someone that was not there when I needed them most - but told me they regreted it. My response ::: People that die for our freedom had a choice to be HEROS - these babies have no choice :(
o the left is One of NickyBears finest Guardian Angels, Kendal Lividini ... Kendal is my husbands dear friends daughter that lost her fight to AML Luekemia Jan 7, 2011. We know that Kendal is watching over Nicky because she prayed her heart out for him, despite her own illness. Kendal, if you can see this ... we miss you and are so grateful for the love you had for a little boy in Memphis just beginning this journey. We believe you will always be watching over him.... I also placed the Orange ribbon on your photo, because this month, February is Luekemia awareness month. May God bring CURES.
Baby Evan earned his Angel wings on Saturday 1/21/12 just two days after his first birthday. I ask you all to pray for his family and friends in the coming, days, weeks and months to come. While our minds know that he is home with our Lord, our human hearts long for him to be here in his Momma's arms and to see him grow up. I ache for every family that has endured such an immesurable loss, yet in the cancer community I can't even count how many children I have witnessed earn wings far too soon.
Last night I got a panic text from a dear friend of mine Ginny, little David is the same age as Nicky and their stories are almost exactly the same. David was diagnosed a month earlier than Nicky with the same diagnoses and their treatment was almost the same and their birthdays only 2 days apart. We met in the beginning and having such similar stories, we bonded quickly. David was rushed to ER last night, after bath time he suffered a short stroke. No neurological issues, thank you Lord. I ask that you pray for him while the doctors figure out their plan of action right now. This is David to the right. I ask you all to please pray for peace for his parents while they wait for answers.
However it is through true Faith in the Lord those words turn into hope, determination and you learn to lean on God completely. Jessica Joy Rees a 9 year old touched the world in her 10 month battle against an inoperable brain tumor. She was the child of a pastor from Saddle Back Church in CA. She told the world "NEVER EVER GIVE UP" , she earned her angel wings on Jan 5, 2012. The letters N.E.G.U. standing for her phrase "NEVER EVER GIVE UP" has become her legacy she has left on our world. While sick, Jess created JOY JARS and filled them with treats and toys for kids fighting cancer. This past week we recieved a JOY JAR from NEGU Foundation. I couldn't help but cry when I saw this beautiful colorful kid like box arrive and saw Jessica's photo on it. Through so much sadness there is so much good that rises from people like Jessica.
We take a ton of naps together and I am just so grateful to cuddle with this precious boy of mine. He has finally added some new words to his vocabulary - LOL of course Elmo is the word this week, no shocker there since he loves Elmo. He's such a boy too, Cars everywhere and we repeat watching the movie Cars non-stop from his room to the living room there is a trail of Cars everywhere. This past month I decided I was done waiting at Rose Cancer Center for port flushes when I knew I was completely capable of it myself. Some of you saw the post on Facebook but this is the needle I have to place in his port in his chest to flush monthly. I promise you a cancer mom is truly an un-certified nurse. Its amazing all I have had to manage and learn over night during this journey.
He is just a joy and so interactive, he loves to play with his toys and now he imitates what the characters do from Toy Story. It's just amazing how much he has grown in the last few months. He LOVES to Dance and LOVES to slap and twirl around till he falls on his butt. I am just so blessed God gave this child to Nick and I! He loves to chase the dogs around and tease them and he loves any attention his big brother Christian will give him. I look at him in amazement when I take a look back from videos and photos of the last year and a half, he's came so far and we thank God every single day for this gift.
Oh ... lastly I forgot to mention we started speech therapy to get the ball rolling and even though its very repetitive, I have learned sitting there how to help Nicky be more vocal and it is totally catching on. When we go to the pantry now he use to shake his head - now if I grab the wrong thing he bluntly says "NO" lol ... he's becoming more vocal and saying new things all the time - what a blessing! Thats Nancy below his speech therapist!
2. Ashlan B. (showed in the photo to the left) was diagnosed with astrocytoma - STILL fighting her disease and scans Feb 22, 2012 next scan we want NED. Her Momma wrote:::
10. Riley B. ( to the left) another reason I post tonight .... just recently diagnosed with pituitary tumor .... not sure what it is - BUT PRAY! His Momma hasn't updated the caringbridge yet.
17. Brody S. in the picture to your right was diagnosed with a PNET tumor, just moved back into Target House to start chemo and already completed full crainal and spinal radiation. He needs our prayers, I will take a quote from his website his Momma wrote:::
29. Avery C. (to the left) hit a bump in the road once again this past October and she is now on a new protocol in her treating home hospital, she just scanned there and is STABLE thank you Lord ... we want to see N.E.D. please pray this treatment continues to work for her. She will also be scanning again at Jude Jan 29 - pray for even more healing ...
31. Haley H. (in photo to the right) after her relapse of Anaplastic Medulloblastoma and finishing full radiation I am happy to read this post from her Momma on Dec 13. ::::::::::
