Dexter Lawrence Authentic Jersey  Updates

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June 25, 2010

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We had labs drawn today and his counts were overly high from the rescue shots we are giving him to combat when they drop. His ANC (absolute neutrophil count) was 5,900They still want to keep us on fluids to make sure he does not get dehydrated if he gets sick. The nurse practitioner told me he is still not out of the woods with getting sick from these drugs. We say, GOD IS SO GOOD - he’s still is not getting sick at all!!!!

June 24, 2010

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We got discharged as inpatient today. They sent us home on IV fluids just in case he does get sick they want to make sure he is really hydrated. However, GOD IS SO GOOD – he isn’t getting sick at all! His ANC (absolute neutrophil count) was 12,500. In healthy people It’s typically 5,000 to 10,000. This is normal when you give the drug prior to the counts dropping. the woods with getting sick from these drugs. We say, GOD IS SO GOOD - he’s still is not getting sick at all!!!!

June 22, 2010

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Daddy stayed with you last night and I will be with you tonight. Day 8 is here (Cisplatin 6 hr drip and Vincristine IV push) , it also marks that your now 9 months old today. Stay strong my boy, know that I love you more than I ever thought possible. You and your brother are my precious boys and I just love you both more each day. I know this journey isn’t easy for you (for me nothing, I have ever lived through has been worse ) – but one day we will look back and we will tell the world how Jesus healed you.
God’s hands are all over you baby!

I love you…your Mommy!

June 23, 2010

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Today is Day 9 of the chemo cycle and he finishes the tough drugs today. They told us that some kids get sick during day 8 and 9 but mostly it is a delayed reaction to the drugs administered. He has been in a good mood and hasn’t gotten sick. The speech therapist is certain his mouth is strong enough to eat, it’s whether his throat is ready or not to swallow properly. The easiest way to explain it is, try holding your tongue and swallow – it’s impossible because when we swallow, our tongues with force push back and cover our airway while the food and water hit the back of our throat bypassing our airway. This is why he may be swallowing great right now but not always swallowing properly. Our problem is that if he swallows wrong, he aspirates which means fluid will enter his lungs. He coughs to clear it like anyone would but these cough attacks last longer than just clearing your throat and it hurts him to cough. So today just pray for God’s healing on his throat and his vocal cords so that they may heal perfectly. Praise God that he has not been sick at the hospital and thank you Lord for giving us today --- I loved holding him for hours today. He was in a cuddly mood.

June 21, 2010

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Starting day 8 and day 9 of chemo cycle tomorrow so we go inpatient tonight. I feel so sad today. I miss home. I miss my puppy. I miss normal. I miss my church.
Today marks one month since God administered the hands of Christ through Dr. Holly Gilmer and removed the tumor from my babies head. Glory be to God for that miracle – and all glory to God for bringing us this far.
Today was the 1st dressing change without nurses assisting me. Nick helped me with it and what a long process it is. It amazes me how quickly educated you get into a totally different lifestyle. I never imagined anything like this.

Dear God,
Grant me the strength to keep going – to keep looking forward with my head up – today was as really sad day for me and I need you more than I ever have …

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