Dexter Lawrence Authentic Jersey  Updates

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July 1, 2010

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Once again his ANC is at 0 and hasn’t had a fever since we checked in – go figure lol. But his hemoglobin has dropped and he needs a blood transfusion today. So I guess it was best we were here now anyway. No reaction to the blood and all is well he is playful and ready to get out of here.

Dear Blood Donor,
I can’t thank you enough for the gift of blood you gave my son. As I watch your blood going into my child’s line, I am reminded how much good there is in the world. And Though you will never have a name and I will never be able to thank you personally, I just deeply thank you from my heart whoever you are wherever you are – thank you and May God Bless you for giving. I strongly encourage anyone to give blood when you can, not just when you see a Red Cross sign but make a point to give when you can – it saves lives and it is a gift and a true blessing. Find a local blood bank it takes less than an hour and you can give every 2 months. People ask all the time if there is anything they can do, I ask on my son’s behalf for you to donate blood.

June 30, 2010

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Baby’s ANC is at 0 today and he has a fever of 99.6 which means we are automatically admitted inpatient for at a minimum of 48 hours. We knew this would probably happen since he gets fevers often for no real reason. They took cultures and they take 48 hours to come back so that is why it is the minimum. So now we just pray for no infection and that his counts go up soon. They automatically but him on Sepapem an antibiotic that is combating anything he may have while his counts are low. They have this process down like a drill.

June 27, 2010

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We had labs today and his counts are starting to drop as anticipated they are now at 2,900 and I am starting to dislike being the bad guy having to give my little guy shots daily to raise his ANC counts – however they say that the IV form of this takes longer for them to recover and I simply want to give him the best chances to recover better – so instead of IV we choose Jesus and the shot’s (smile). Nick said he crawled today, not far but enough to makes us both smile. He hasn’t wanted to crawl since his line and g-tube were put in because it just hurt him too much. So today was a blessing to see him wanting to move around like he use to. AND …. HE’S NOT SICK AT ALL – THANK YOU JESUS !!!! They took him off fluids too.

Dear Lord,
Today when reading how Jesus told us to pray – Our Father whom art in Heaven, hallow be thy name …. Thy will be done ….. ( not MY will - YOUR will …. ) and I stopped to remember – it is YOUR will Lord no matter what the day brings …. That will be done on earth as it is in Heaven.

June 29, 2010

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ENT appointment today …. I felt like someone took a bat and smashed it into my gut. It’s not that the Doctor said anything I didn’t know already – but I wasn’t ready to have it confirmed. The baby’s left vocal cord is paralyzed. The right one is weak but is already trying to compensate for the left. Out of all the nerves located near the brain stem, his hearing is perfect, his vision is perfect and he has no facial paralysis. None of those are recoverable after surgery if they are knocked out, EXCEPT vocal cords which can take up to 2 years to recover. Unfortunately, one of our chemo drugs (Vincristine) actually makes it worse temporarily. So does radiation which is our next course of action after the next 3 rounds or chemo. That was frustrating to hear, BUT there is hope and My God performs MIRACLES. This is the reason why he is not swallowing properly. Vocal cords are shaped like a V and they work together to close the airway when swallowing. When one of the vocal cords is paralyzed, that half of the airway is not shutting properly and therefore any liquids or food you swallow has the chance of ending up in the lungs. That is call aspiration and it is extremely dangerous for Baby Nicholas because it could cause infection while his body is not able to fight infection. So for now just pray so so hard for his vocal cords to be completely restored. This test will be repeated in 3 weeks.

Dear Lord,
My Great Physician! Please Lord heal our boys vocal cords so that he can swallow properly. Lord, you have been so good to us, but this causes us the most concern and stress during this healing process. Please God, place your precious hands on him and heal him totally.

June 26, 2010

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They said we didn’t have to do labs today because they would check us tomorrow so no appointments today !!! We are so thankful to God that he is STILL not sick from these drugs. He has been in a good mood and keeping his feeds down completely. We couldn’t ask for more during these really hard chemo drugs.

Dear God,
We continue to pray for restoration of his vocal cords and that his swallow improves …. We are so grateful for this week and how easy you made this round so far. We will glorify you and endlessly thank you for this week.

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