Updates
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So he did just fine on last night on chemo and tonight he does his final inpatient chemo drug Cyclophosomide (IV 1 hr) then we are done being inpatient, unless he gets a fever but we are sterilizing and praying so hard that does not happen this round. As you might notice he is finally losing his eye lashes - so glad this is the last round so everything will be growing back now!
Please pray his counts go up quickly this round and mostly that his MRI is stable, it is currently scheduled for Thursday, September 23. God's got his hands on Baby Nicholas.
So we started our day with Nicholas' ABR testing and he was a little fussy since he needed to fast for 8 hours prior to the test. The results came back and were stable. His hearing in his right ear has actually improved and the audiologist said anything can happen because a baby's hearing is not done developing until they are 18 months of age. So we will keep praying for more improvement for his left ear and and for the next test to show more improvement.
What a week, I found myself roaming the empty halls of St. Jude miserable. I couldn't sleep - I am hurting so much for my friend right now that I can't think straight. I can't handle another night here right now - yesterday was the brutal reality that at any moment everything can change in just moments and it can be any child here. I prayed my heart out crying most of the morning. Then a bit of sunshine came in when my nurse told me that Nicholas' Methotrexate levels were at .43 which its typically .9 or .8 but never that low and my Doctor told me that the longer than use this drug the harder it becomes to clear because the body gets use to it. So my doctor was attending upstairs and she knew I was having a rough time being there and so she told me they were discharging us as long as I was ok with giving Nicholas IV pushes of Lecovorin which is used to prevent the damaging side effects of Methotrexate. I think my doctor knew I needed a mental break and didn't schedule me to come in until Tuesday. So our last time doing this drug and our last room number for it B2077.