It's been a long week recovering and the longest week since we left the PICU in Detroit. Nicholas is recovering slowly and his ANC today is 300 so they are finally allowing us to leave the hospital and go back to Target House. I am so thankful to God that we are getting out, I am not sure mentally I could take another day just sitting there watching the clock. The days of being inpatient for fever and counts are long and exhausting and so difficult because it gives you too much time to think. When your inpatient for chemo, you feel like your at least getting somewhere and there is a plan in action. We were hoping his ANC would be higher, but we will take any inch of improvement God is willing to give us right now. He still has cold like symptoms and I am just praying they subside before we go in for chemo again next week.

Support

Ependymoma - EpendyparentsThe International Largest Group for Support

Go to Facebook Ependyparents and Join

Visitors