Please update your Flash Player to view content.

Sorry for the delay, there were many calls with doctors and still no solid answers as to why these radial changes exist. Nicky remains a happy silly boy and for that we are grateful.

I know I told you I would not use this as a family blog, but while we were in the midst of possibly starting HBOT treatments 5 days a week 2 hrs a day for 8 weeks to help those changes...... God tossed us another surprise - On Monday Sept 9th at 10:30pm California time which is 1:30am Tuesday Sept 10th my phone was going off and Nick noticed it around 3:30am ..... the words "my water broke" from my dear friend who has been carrying our twins for us and the panic that I felt after not sleeping for weeks over Nickys scans - all I could think is this can not be happening shes only 33 1/2 weeks pregnant! Well it was happening and I packed the whole night and flew out that afternoon only to make it around 8pm out to Cali, then while trying to stall labor - apparently our daughter had her own escape agenda and we ended up in the OR for an emergency C-section and our Daughter was born on 9/11/2013 at 4:24am at 4lbs 2oz and her little brother, our 3rd Son came at 4:25am a minute apart and was 5lbs 2oz and they were tiny and well but needed time to grow .... I have been out here ever since and missing my family in the worst way .... finally Nick brought the boys and we finally were a family of 6! Gods timing keeping me away from mainly Nicky left me a wreck but hes been so sweet to the babies and kisses their heads and says I love you since I love them isn't something hes use to saying yet lol.  There is so much to tell .... but I just needed to tell you to pray we come home early - Nick and I are tired of hospital living and boy has our family done a lot of that!

I will update more on Nicky with the treatments and yes with photos when I can I just can't from a lobby computer! Thank you for your continued prayer, we really need it ! Also pray for complete healing for my friend she went through horrible labor and then knowing it would be a csection - I have to believe she did all she could to try to get me there in time - my heart is filled with a love for her that no words could ever give justice - she gave us the most precious gift through our Father Above!


Ependymoma - EpendyparentsThe International Largest Group for Support

Go to Facebook Ependyparents and Join