|
DATE_FORMAT_LC3
I hope everyone had a wonderful Christmas and with "Hope" in their hearts that this will be a great year 2012! Praying it brings cures and better treatments for so many diseases.
Nicky has been a "JOY" and it was a blessing to watch him play with his cousins and interact with them really for the first time during the holidays. It was a special Christmas because he actually unwrapped gifts and his face lit up when he got super excited and, of course his favorite phrase with his hands turned up, "Whaaaaa's Dattttt???" He repeats it over and over lol its pretty funny when he is excited over something. He has new favorite movies lately, Cars is by far over played in our household daily. Now he's into BOLT and Megamind too. He's pretty picky and will give you the DVD he wants to watch no matter who is watching TV he rules the house. We have accomdated that by using a mini DVD player for him to view on so the rest of us aren't subjected to having to watch his choice 24/7 but I truly don't mind watching his favorite movies.
This photo was from Christmas morning. While he seemed totally happy with the Cars versions he got, his Baba and Dedo had to trump all Santa did and Mom and Dads gifts later that night....
Thats right, he got his first car at age 2 and I told everyone I will gladly replicate this car at age 16 - GOD PLEASE KEEP HIM WELL! He watched over his new car like a hawk, it was so funny to watch him. Christian got everything he wanted too and is following his Daddy wanting to play Hockey now ... GO WINGS :) --- our Christmas finale' George style was 22 pairs of Uggs lol yes everyone got a pair all 12 grand children and all the kids and spouses. it was a year to BOOT ! : )
He is becoming easier to take to dinner and in public places now though we are diving into cold season, we are trying to limit where we take him. He loves his tummy rubbed and it's so great to feel that bare belly with nothing on it anymore! 1 1/2 years with either a tube of bandages and now it is gone .... it's wonderful and God is GOOD! Many of you know I am extremely involved in the cancer community and with that comes news on any given day, or a new family reaching out for support. I never turn away from that responsibility..... I pray for more children than I can keep up with, I have a mental schedule of MRI's and follow up with the parents ... some families I tend to get closer to.... and while I celebrated the Holidays, I was still reminded of children that had passed away Marlie D. 9 yrs old, passed away New Years Eve. please pray for the Dodison family. While so many parents faced their first of many holidays without their children, I want those parents to know I remembered you all, I see each of your babies and childrens faces in my memories and I pray at different times for strength for each of you. Just like MRI dates I memorize mentally, I haven't forgotten a date of each child I followed pass away. I mourn for the parents and families that are missing them so much. While some kids I know are fighting so hard, the reality that some families cross into yet another bridge after a relapse ... is the possiblity that are efforts have been exhuasted... for the littlest fighters there is only so much their bodies can take and for some, there are no curavtive treatment options. I know this sounds silly, but we bought the Star Wars series on DVD and since Christmas we have watched 2 each night ....in one espisode this dialog remains true for Christian's:
- Luke Skywalker: You don't believe in the Force, do you?
- Han Solo: Kid, I've flown from one side of this galaxy to the other. I've seen a lot of strange stuff, but I've never seen anything to make me believe there's one all-powerful Force controlling everything. There's no mystical energy field that controls my destiny. Anyway, it's all a lot of simple tricks and nonsense.
- Ben Kenobi: [gets up and takes a blast helmet] I suggest you try it again, Luke. Only this time, let go your conscious self and act on instinct. [puts the helmet on Luke, which covers his eyes]
- Luke Skywalker: But with the blast shield down, I can't even see! How am I supposed to fight?
- Ben Kenobi: Your eyes can deceive you. Don't trust them. Stretch out with your feelings! [Watches Luke succeed in blocking the lasers] You see? You can do it.
- Han Solo: I call it luck.
- Ben Kenobi: In my experience, there is no such thing as luck.
Funny how you notice things that apply to everyday life, if you just apply the word GOD instead of FORCE how true this example is..... we base so much on what we see.... to be honest it is difficult seeing so many children not make it and yet believing completely that God's Hands are on every single situation... even when prayers aren't always answered. Miracles exist, the problem is that in pediatric cancer - we just don't see them often enough and still the fact remains that even the worst types of cancer some children survive all odds and some live much longer any doctor could predict.
Yet to the left of this site since I built it remains a simply verse: Corinthians 5:7 We live by faith, not by sight. Yes it is easier said than done, but it is essentially crucial being a cancer parent. BELIEVE ... BELIEVE ...BELIEVE ... to not judge God by what we see daily, but to believe all things are possible through God, true FAITH. It is a struggle, but this year I am going to do my best to wake up regardless of the 10 plus, new updates in my email box awaiting me to lose all faith in a bad report ... or that we lose another child we have prayed for.
So tonight I have been following two special children that have both been on my heart, I ask you to dig deep and pray for Anna Rose whose last MRI on Friday showed that the cancer is aggressive and new tumors are present.... she's turning 2 soon ... please pray for her follow her her: http://www.caringbridge.org/visit/weloveannarose
Secondly, another little man that has my heart in knots ... he is 11 months old and his name is Evan Wolfe ........ he was inoperable and has the same diagnoses as Baby Wade his site is at http://www.caringbridge.org/visit/evan011911 .... they need us to storm heaven please ...Lastly we have our little man David P. scanning on the 19th ... pray for NED .... and please Lord keep our Nicky cancer free, we are 6 weeks away from going back to St Jude .....
So tonight ... let's believe in MIRACLES and that GOD is and always will be in CONTROL of ALL things .... we need CURES ....
God Bless you all .... The very PROUD Momma of my boys .... hugs from me and my NICKYBEAR!