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Since we switched chemo drugs yesterday, we now need to do a test for Nicholas' liver and kidneys to see how he will clear this drug. It is called a NM Plasma Clearance Injection and done in Nuclear Medicine. Once administered they will draw labs 1 hr after injected and then at 2 hr and then again at 4 hrs. So in between these labs at 11am we went to wound care to have his G-tube switched out to a Mickey Button. Well, little did I know this would create a nightmare of a day for us! As soon as she pulled the g-tube, he cried and tighten his abs. She tried once to place the Mickey Button and then looked at me and said it closed. I was in shock, I said what do you mean it closed? I was never told that could happen! I lost it and tears just started rolling down my face. I was a mess. The nurse came back in and felt so bad and brought kleenex for me. She said we will fix this today I am so sorry. I tried to explain to her it was just a rough couple of days, he had a bad hearing test yesterday, we switched drugs and now this. I just cried. She said we will fix this. He hadn't ate for 2 hours prior to that so now he needed to fast 6 more hours to be sedated to have it the Mickey Button placed.
So, during walking around for 4 hours I ran into Karen who works in the Diagnostic Imaging area where they place lines, ports, g-tubes etc. I stopped her in the hall and said we are seeing you at 4pm for placement, I am afraid this his stoma (the hole in his stomach) is going to close completely if we wait 4 more hours. She agreed and they placed a temporary catheter to keep this stomach from closing completely. At 4:00pm he was sedated and they dilated his stomach and we able to place the Mickey Button. Wheeewww breathing once again. What a mess and now we go in for chemo!