What a week .... so much undisclosed but this journey is about Nicky ... so on Thanksgiving Eve I find it impossible to not write about how thankful we are for every minute of every day with him.  Yesterday marked that we is now 26 months old ... everyday and every month is a BLESSING .... we do not take for granted. We met locally with the surgical team at Beaumont to close NIckys tummy surigcally because after 5 months of wound care, NOTHING is closing this thing.  The surgeon told me that if it didn't close in a few weeks that is should be done surgically - while relieved it was finally being handled .... another surgery Ughhhh ...  thankfully it's and in and out procedure and we do not have to stay in the hospital, which Dear Lord.... THANK YOU ... I couldn't bear to sit in the hospital he was in after surgery ... I pray we never have to stay there ever.

Our scan is a week away, ... thanksgiving is tomorrow .... ask yourself ... what are you truly grateful for? This is a simple answer for us .... we are greatful for Jesus Christ who allows us sinners a gateway to God .... someone stopped Nick in a store randomly and asked, "are you are Christian?" Nick replied YES .... he said do you know why God sent Moses and the 10 commandments? Nick was a little taken back a stranger grabbed his arm and asked him this ... the mans reply was ... God knew that the 10 commandments no one for be able to find salvation and this is why He sent Jesus Christ..... he looked at Nick and said look around you .... do not be stressed and do not worry .... if you do you take Jesus back to te cross and he already paid that price - don't take him back to the cross again. Profound for a stranger to apporach him in such a way ... he told him to think of others first and to just be happy ... do what Jesus did for us ...

Tonight I post no photos .... but ask you that tomorrow when you sit at your dinner table that you pray for cures, pray for our Nickys scan a week away that it is clear and mostly ... pray for all the families that are in treatment and the ones that we have lost that are soooo missed this year and for the years to follow....

My greatest lesson - is compassion .... give when you have change to give - give when you have dollars to give ... help when you can donate your time to soup kitchens and even your local salvation army ... all volunteers ..... find your way to make a difference this holiday season...because any effort from your heart matters..Find a way to leave an imprint on others hearts .... pay attention to people around you, maybe you need to grab someone, or maybe you need to be grabbed ... either way .. learn from us ...

I am grateful Lord for my boys .... the blessing they are ... I am beyond grateful for every mintue with Nicky .... I am BLESSED beyond measure that my husbnad supports me and all the time I spend volunteering my efforts to aid pediatric cancer. I am blessed because my family is only second to God .... and I am grateful for the lessons, even the ones filled with pain ... I am grateful for my friends - the ones that are truly family ... thank you dear Lord ... for all you have done for us and continue to do .... please allow Nickys scan to be cancer free .... God Bless you all and have a Happy Thanksgiving ...

Please pray for Laine Watkins family as she earned her wings this past week and find myself wishing we just had cures!!!! Lord give researchers PLEASE  Amen ... amen .... AMEN ... Happy Thanksgiving

btw - Colin T is still caner free .. thank God!!! ...   : )

Support

Ependymoma - Ependyparents

Go to Facebook Ependyparents and Join